Showing posts with label RAI. Show all posts
Showing posts with label RAI. Show all posts

Friday, 16 July 2010

News Article: High Security RAI Alert at Customs

A cancer patient recovering from radiation therapy sparked bomb fears as he drove off a Channel ferry.

Officials checking for radioactive material stopped Peter Davies, 60, after he set off detectors at Dover.

He was allowed through only after he showed a letter detailing the thyroid cancer treatment he'd had a fortnight earlier at St Bart's, London.

Mr Davies, of Witham, Essex, who was returning from France with partner Pauline Marr, said: "It was all good-natured. I know they have to take precautions."


Tuesday, 21 July 2009

Another day, another Endo

Today I got to see the Senior Registrar, and what a lovely, funny man he is!

We briefly chatted about my consultation with the ENT surgeon, and he made a few phone calls to see if he could do anything to put the 'hurry up' on my CT Scan appointment.

We discussed my weight, and the fact that I really do need to get it off, especially if I do decide to go for the thyroidectomy. He has referred me to a dietitian, to see if they can help...because as far as we can both see I'm doing all the right things, and getting all the wrong results. Of course my thyroid isn't helping, and so in order to find a way through the gloom we're both hoping that a dietitian might have a few more ideas.

He gave me some info leaflets on both the thyroidectomy, and the RAI, and then said that although the decision is still totally mine, he thought it important for me to consider a few things.

Radio-Actve Iodine Treatment (RAI)
  • Obviously a lot less invasive, but....it doesn't always work first time and thus might need to be repeated.
  • *might* reduce the size of my goitre, but this isn't guaranteed, and if it does reduce it, it won't completely get rid of it, so I may still have the breathing/snoring/swallowing problems.
  • I'll have to stay isolated from *everyone*, including my husband, for up to 10 days afterwards. Stay away from young children for up to 2 months.
  • We wouldn't be able to start a family for up to 2 years afterwards.
Surgery
  • Will remove my goitre.
  • Will remove my thyroid gland completely
  • Will mean I'll have to take thyroid replacement medication for the rest of my life
  • Will allow us to start planning a family as soon as my bloods level out after the op
  • Carries risks, as any surgical procedure does, some of which may be short-term, some of which may be permanent, and include damage to the parathyroid glands (rendering the patient hypocalcaemic), voice box, laryngeal chords, damage to nerve endings causing loss of sensation, numbness etc etc.
  • Not to mention they are digging about very close to some extremely important arteries there in your throat, namely your carotid.

Decisions, decisions, decisions....but I guess all this is academic until I've had my CT Scan, then we'll all know exactly what is where in there.

Friday, 8 May 2009

RAI or Thyroidectomy?

Hoping this remains a hypothetical question for me, but I'm curious to hear other folks opinions on it...

Its becoming more and more clear that my thyroid gland is becoming more and more unstable. The latest set of bloods have me very hypO, even more than I was a couple of months back.
TSH is 18.3 range 0.15-3.2
my FT4 is apparently "below absolute low"...which is interesting, surely the lab should be able to detect it somehow, no matter how low it has dipped.

I've had noticeable goitre on the left side of my neck for years, with nothing to show on the right hand side. But, suddenly, in the space of 7-10 days the right hand side has now swollen to larger than the left, and is incredibly uncomfortable...breathing, swallowing, neck movement, all compromised.
My neck looks like a bullfrog, and my voice is so hoarse I sound like bullfrog too!

Due to see my endo on the 19th of May, but my GP has advised me to think about the fact that my Endo will now very likely suggest either surgery to remove it completely or RAI treatment.
For the record, I'm 35, married, no kids, but would like to think about having children in the reasonably near future, if I can only get this thyroid to behave itself.

So, throwing this 'hopefully' hypothetical question out to blog-land...if you were given the choice of surgery to totally remove the thyroid gland, or RAI treatment which one would you go for, and don't forget to say why?

Thanks in advance

Tuesday, 11 November 2008

First Endo Appointment

I'm not sure we've made the best first impression with each other.

Let me explain.

I turned up at 2 o'clock, 30 minutes before my scheduled appointment time, as requested in the letter I received. I checked in and all was breezy.

I sat and read my book for an hour, and then my name was called.

The nurses weighed me, took copies of my latest blood tests, and then sent me off with a sample pot to wee in. I'd drunk so much coffee by this time that this request was easy.

I then sat back in the waiting area for another 40 mins or so, and was called again. This time they wanted to send me for an ECG...routine for new patients apparently. And so I headed off to hunt for the elusive ECG room...I hunted high and low, I followed various sets of directions from all manner of hospital staff that I came across in my travels around the maze of corridors, and after getting increasingly frustrated and irrationally angry about the whole process, I finally found it...hidden near what appeared to be some laundry rooms...of course!

ECG results back in hand, I headed back to the outpatients department, and gave them into the nurse's station.

And than I sat back down and waited....and waited....and waited.

Around 5.30pm I realised that I was the only person left in the waiting room, and that the cleaning staff were starting to converge...emptying bins and sweeping the floor. The nurses were in their room, sitting around with coffee, presumably winding down after their shift. The receptionist looked as if she was doing her final tidy-up before heading home, and she looked at me puzzled, as if she'd only just noticed I was still sitting there.
I was tired, I was grumpy, I was snappy and I was starting to get upset. Then the consultant endocrinologist himself walked into the waiting area, with his brief case, looking for all the world as if he was clocked-out and heading home. He asked me why I was still sitting there...I looked him in the eye and replied that I was waiting for my 2.30pm appointment. He looked confused, asked me my name, conferred with the receptionist, called up one of the nurses, and then, with a sigh, he turned and invited me back into his consultation room.

I must confess, I was incredibly pissed off at this point, and I went to war on him....I told him I had better things to do than sit in his waiting room for 3+ hours, and told him inconsiderate it was to keep his patients waiting so long, how we do have lives, and why bother giving out specific appointment times if they weren't going to even bother trying to stick to them.
He then started back at me, saying that occasionally appointments take longer than expected, and would I want to have a strict, timed appointment, or would I prefer to have as much time with the doctor as my particular case required, and hence why appointments can start to run late.
I explained that I understood all that, and that yes, I would be very angry if my consultant was clock-watching throughout my appointment...but seriously, going in to his consultation room at 5.45pm, when my allotted appointment time was 2.30pm was more than a little excessive!
I suggested, that instead of giving out set times, why not just work on a first come-first served basis...we spent a good 5 minutes or so shouting at each other - we were going around in circles, and he stormed out a side door, where I overheard him giving the nurses a very hard time over it all....like it was their fault, apparently...

He came back in, looking more than a little sheepish - I guess one of the nurses threw some of that flack right back at him - and suggested we start again, and try to get back on the right foot with each other.

He spent a good while going over all my recent blood tests, mumbling into his Dictaphone, and then finally addressing me with the news that I was had a classic case of Grave's Disease....a momentous occasion for us all I might add!

We talked over what that meant, what my medication should do to help, he briefly mentioned Radio-Active Iodine treatment (RAI) and also thyroid surgery, but also added in quickly that it was very possible it wouldn't come down to that, and that hopefully the medication would be sufficient to cause my thyroid to comply and go into a state of remission.
He also expressed concern over my high blood pressure, and suggested I have a 24hr blood pressure monitor done. He said he would write to my GP about this. He also wrote me a prescription for Centyl-K to help with my blood pressure - but I don't think I'll be filling it - I'm too young to be on medication for hypertension FFS!

He made an appointment for me to return in February '09. My appointment time was given as 2.15pm this time, so I joked that I should probably turn up around 5.30pm then...he had the good grace to laugh, and said "No, we won't make that mistake with you again".